Here we go again.
After a short planned admission under the care of my consultant I was able to be weaned off regular ventolin. My theophylline was also stopped due to tachycardia and my prednisolone was tapered down. I was able to lead a relatively normal life for a short time before I started to steadily decline.
Last Friday I spoke to my asthma team due to the fact that I was really beginning to struggle again. My prednisolone dose was increased for a week, I'm now on the final day of increased pred and frankly not feeling any better, a very disappointing result. I'm currently concerned that I may end up in A&E again in the near future. I'm constantly tired and though I love walking my dog it is getting quite difficult with the breathlessness, I have had to let my OH take her out on his own a few times this week and I hate missing walks.
I'd be lying if I said I wasn't feeling a bit down about the whole thing, I guess I'm almost in mourning for the life I had before. I know its not a great attitude to have, but I do have regrets about things that I'd put off, for example I'm scared to travel outside of the UK now, with complex medication and an unusual presentation of asthma I'm scared that I may not be able to access the care I would need in an emergency especially if I can't speak the language. Another thing I'd always wanted to learn to scuba dive but its very unlikely I'll ever be signed of as medically fit to dive. At the end of the day these things aren't necessary for good quality of life and I should be thankful for what I have but it is difficult knowing I'll never achieve dreams that a few years ago would have been within reach if I'd been more motivated.
Last Friday I spoke to my asthma team due to the fact that I was really beginning to struggle again. My prednisolone dose was increased for a week, I'm now on the final day of increased pred and frankly not feeling any better, a very disappointing result. I'm currently concerned that I may end up in A&E again in the near future. I'm constantly tired and though I love walking my dog it is getting quite difficult with the breathlessness, I have had to let my OH take her out on his own a few times this week and I hate missing walks.
I'd be lying if I said I wasn't feeling a bit down about the whole thing, I guess I'm almost in mourning for the life I had before. I know its not a great attitude to have, but I do have regrets about things that I'd put off, for example I'm scared to travel outside of the UK now, with complex medication and an unusual presentation of asthma I'm scared that I may not be able to access the care I would need in an emergency especially if I can't speak the language. Another thing I'd always wanted to learn to scuba dive but its very unlikely I'll ever be signed of as medically fit to dive. At the end of the day these things aren't necessary for good quality of life and I should be thankful for what I have but it is difficult knowing I'll never achieve dreams that a few years ago would have been within reach if I'd been more motivated.
posted by Stephie at 2:46 PM
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