Thursday, August 08, 2013

Still incarcerated

I'm still in hospital and don't really know what the plan is other than that they want to get me out quickly. Frankly I'd much rather stay a bit longer and get things properly sorted so that I go home on a reasonable amount of salbutamol rather than the inhaler-a-day habit I seem to have developed of late so that don't end up straight back in hospital within a week or so. Really I'd like to see changes to my treatment to try to prevent such episodes, but as it seems like that isn't likely as we've exhausted all avenues I feel like we should be looking at symptom management, and trying to keep me out of hospital. Constant trips to A&E and being in and out of hospital all the time is tiring and disruptive, add to that the fact that I tend to initially deteriorate on wards and it seems even more like something we should be trying to avoid than for most. I've been struggling with daily asthma symptoms for quite some time now, and its no way to live. I hope that this isn't as good as things will get but if it is I think home nebs would make life easier, I just want to go home and live as normal a life as I can manage, and want as many tools as possible in order to manage that.

I'm feeling rather stuffy in the nose department today suggesting it's either a high pollen day, or I've caught the cold that the nurse on MAU had, which wouldn't be surprising as I catch everything when my prednisolone dose is increased, another reason why being in hospital is a particulrly bad idea for me. Either way I dont see today being a good day today.

I'm hoping that when the doctors get round to me they'll have more of an idea about what to do with me. I never know how long I'm likely to be in due to the 24 hour neb rule for asthmatics, and the fact that they've broken it in the past too.

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